Posted on March 3rd, 2014 in Anita Bandrowski, News & Events, NIFarious Ideas | No Comments »
The Brain Health Registry — led by researchers at UCSF — is a groundbreaking, web-based project designed to speed up cures for Alzheimer’s, Parkinson’s and other brain disorders. It uses online questionnaires and online neuropsychological tests (which are very much like online brain games). It can make clinical trials — which are needed to develop cures — faster, better and less expensive.
The project is scheduled for a public launch in the spring, but we’re inviting you to be among the first to participate and provide feedback.
- It’s easy. It takes a few minutes to sign up and less than 3 hours per year. And it’s all done online, so you can do it from home — or anywhere you have Internet access.
- It offers a breakthrough. 85% of clinical trials have trouble recruiting enough participants. By creating a large online database of pre-qualified recruits, The Brain Health Registry can dramatically cut the cost and time of conducting clinical trials. This is the first neuroscience project to leverage online possibilities in this way and on this scale.
- It’s meaningful. With every click of the mouse, you help researchers get closer to a cure for Alzheimer’s and other brain diseases. If Alzheimer’s runs in your family, this may be an important gift to your loved ones.
- It’s safe. Top scientists from some of the most respected institutions in medicine are leading the Brain Health Registry. They understand your need for privacy, and they will protect it at every step of the way.
We’re currently in our pre-launch phase. Try it out! If you offer feedback – and we hope you do – we will read it, consider it carefully, and respond to you directly.
As an early adopter, you can help us in two ways. You can help in the way all members can help — by answering the questionnaires and taking the online brain tests, you strengthen the database that the scientific community needs. You can also help us improve our new website – we’ll be making many changes, based on your feedback, before our public launch.
Please take the time to visit our sight, sign up and offer your feedback.